Nini's pressure is good, which means no shunt. She will have surgery tomorrow morning at 9:00 for the tethered cord release. They will leave the EVD in until after the surgery. They will keep drain open during surgery so there is little risk of the Chiari causing any pressure issues during the surgery.
Nini was a trooper today. We went ahead and shaved the rest of her hair. There was just no way to make it look right without starting fresh. As I cut and shaved her hair, it was all I could do not to cry. There are little ones laying in the rooms all around Nini's that are battling cancer and are losing their hair because of that. It broke my heart to think of them and their parents. I cannot even imagine how difficult it must be for them.
After Nini's hair was cut (which, by the way, was harder than giving an eel a haircut!), I held her up to the mirror, half afraid she would be upset. She looked at it and said, "So pretty! I like my Baba haircut!" (Virgil keeps his head shaved) She is such a sweetheart!!!! Of course, the nurses who were in here and I were bragging about how beautiful she is, and it is so true- both inside and out!
The hospital gave us some knitted caps and headbands that people had donated. If you happen to be one who makes these hats - THANK YOU!!! They are cute and just perfect for little girls who have no hair.
Continued thanks for all the prayers!!!