Count of Chicks for Children

God's Plan For Us

This is our journey - God's incredible plan for our lives. When we followed the moving of the Holy Spirit, He opened the windows of Heaven and poured out upon us blessings we never dreamed of! Indescribable joy!

" For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11

Saturday, August 9, 2014

One day after tethered cord release

Today has been Nini's roughest day since we came into the hospital on Tuesday. She has complained about pain and threw up again. We've had quite a bit of tears. She is on a muscle relaxer, pain meds, nausea medicine, and antibiotics. It's a balancing act trying to decide whether she is having spasms or pain, and what to give when. Since she can't explain exactly what she's feeling (when you only have a year of English under your belt it's hard to describe what is going on) it makes it more difficult to know how to treat. As usual, the staff here at Kosair is wonderful and go above and beyond in making her as comfortable as possible. Her headache brought a visit from a doctor immediately because it can be a red flag that there are problems with spinal fluid leaking. All was well in that area thankfully.
Her best medicine came when her sisters came to visit. She hasn't seen any of them since Tuesday and that's been hard on her. Since she was in PICU until surgery yesterday, we haven't brought them up (we live an hour away from hospital). It's been especially difficult for her to be away from Ximi, and I've heard quite a bit about how much she misses Ximi. She's shed tears everyday for her.
When it was time to say goodbye, neither one wanted to leave the other, so we got permission for Ximi to stay up here with us. Since Ximi will be sharing the window seat with me, I'm hoping she has a good night sleep ;-)
Tomorrow morning the physical therapist will come and get her out of bed and walking. As long as there are no problems we'll get to go home tomorrow. Blessings, cindy

Our little Peanut Butter(Ximi) and Jelly (Nini)


Xiaoyun, Virgil, Nini, Ximi, Elli and Enya

2 comments:

  1. Praying for your every need....

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  2. Praying for your family! Your children are all beautiful inside and out.

    ReplyDelete