I'll start by saying that last night around 11pm they had a room become available, so we are now back out of PICU. So thankful to be back in a room, however, yesterday things were put into a little better perspective for me. In the bed beside Xiaoyun on PICU was a little 4 yr old boy. While I've been whining about being in the PICU for a few days, I found out he has been in PICU for over 2 MONTHS!!!! He needs a lung transplant and won't be able to go home until insurance approves the transplant, gets on the donor list, then flies to St. Louis to have the transplant done. I can't imagine how difficult this is for his parents. They also have 2 other little ones and live in the same town as us - an hour away. His mom said that at first they had a lot of support, but as time goes by, support dwindles. I asked her if I could post his name so you all could remember him in your prayers. His name is Tre (pronounced like Trey), and is hooked up to so many machines that is breaks your heart. It was a good reminder to me about how much so many are suffering and how much I have to be thankful for!!!!
Xiaoyun got the brace on and got up out of bed this afternoon! She also got the drain tube removed, as well as the Foley, and the bandages on her back. They took her off the pain pump, and though she still has the PICC in, it is not being used except when they need to give her medicine. She walked a few steps (not willingly) for the first time in a week and a half. Unfortunately, the brace didn't fit quite right and rubbed her neck, which made her think it was choking her. They went ahead and took it off and had the orthotics department come in and adjust it again. Thankfully, he happened to be just down the street and was able to come and adjust it quickly. Getting up made her nauseous and wore her out. Some Zophran (?) and a nap is where we are at this point. We are so much closer to going home now!!!!!