Praise God!!! She's finished her fourth and final surgery! It didn't go as smoothly as they would have liked, but overall it went well. They put what the surgeon calls 'hooks' in the left side on T1 and T3, and also some hooks in the L1-3 level.When they tried to put a rod in however, the area around the hook at the T3 level crumbled. They were able to put a hook at T5, and ended up using two rods on the left side. That way they were able to adjust the rods as they went and once everything looked good they fixed the rods together permanently. Unfortunately, on the right side they were unable to put a rod in at all. Her spine is turned 180* on that side, and in order to put a rod in they would have had to cut through all the muscles in that area. Since her body already has a tendency to hunch forward on that side, the muscles (that would never be as strong again after being cut) would not have kept her as upright as she needed. Because of that she will still have some compression of the lungs on that side, but it will be better since her diaphragm has more space now. The ribs on the other side he described as now being spaced apart verses almost touching each other, so that lung has really been opened up. He estimates that she is now somewhere between 65* and 75* curvature (she was at 150*!!!). They made the mold for her brace while still in surgery, and it should be ready in 2-3 days. She can't walk until she gets the brace, but will be able to sit up. Once home, she will have to wear the brace all the time except when she is in the bed. She should need it for somewhere from 3-6 months depending on how she fuses. I'm fairly confident she will not be happy with the brace, because it will come up to her chin in the front (since the top left fusion area wasn't as strong, they need to make sure she keeps her neck upright while the bones are fusing.)
Prayers tonight for her pain and for rest for both her and Virgil. Our goal is to be out of PICU as soon as possible and back on a floor. Thank you so very much for all the prayers that continue to be prayed on her behalf!!!